Children with Cerebral Palsy (CP) are at an increased risk of developing hip displacement. The lateral migration of the femoral head out of the acetabulum is a severe and potentially progressive musculoskeletal complication that may require surgical intervention. Hip surveillance is recommended, a systematic monitoring process to detect early critical signs of displacement. In this context, understanding the experiences of caregivers involved in hip surveillance can promote a more effective and family-centered approach.

The objective was to understand the knowledge of caregivers of children and adolescents with CP about hip surveillance in Brazil.

This was a cross-sectional, qualitative study. Participants were selected from across Brazil through convenience sampling, with recruitment via social media, and from the *PartiCipa Brasil* Project. The study consisted of an invitation for caregivers to participate in focus groups. Caregivers of individuals with CP, aged 0 to 18 years, of any sex, of all clinical types and Gross Motor Function Classification System (GMFCS) levels. A semi-structured questionnaire was applied, composed of six main questions and 15 secondary questions addressing topics such as knowledge about hip displacement, monitoring procedures, frequency of X-rays, responsibility for remembering periodic X-rays, whether families receive explanations about X-ray results, among other issues. Interviews were conducted through Google Meet with caregivers who agreed to participate in the focus groups, where the semi-structured questionnaire was administered following a script. Finally, the interviews were transcribed and subjected to qualitative content analysis to identify relevant categories related to knowledge and necessary guidance for hip surveillance.

A total of nine caregivers of Brazilian children and adolescents with CP participated in the qualitative study. They represented different GMFCS levels and came from various regions of Brazil: four from the Southeast, two from the North, two from the Northeast, and one from the Central-West. Notably, there were no participants from the South region of Brazil. The main themes that emerged from the participants’ statements were: "Lack of knowledge about hip displacement," "Access to exams and public healthcare services," "Lack of assistive devices," "Professional misinformation," and "Family coping." Within these themes, subthemes were also highlighted, including Lack of information, Waiting time, Technical language, Cost, Search for information, and Rights.

The qualitative study with caregivers of Brazilian children and adolescents with CP revealed that their knowledge about hip displacement and surveillance is limited. Healthcare professionals should improve their communication with caregivers of children and adolescents with CP to enhance family engagement and adherence to their child’s treatment.

The findings from the focus groups have implications for efforts to improve hip care for children and adolescents with CP. Pragmatically, they can contribute to enhancing family-centered practice, making hip surveillance more accessible, better accepted, and better understood by parents. Building partnerships, adopting a proactive approach to coordination, and developing clear, easy-to-interpret reports or feedback for families are crucial considerations for the future of this practice in Brazil. Strengthening communication between professionals and families will ultimately lead to better adherence and improved outcomes in hip surveillance.