The Core Set of the International Classification of Functioning, Disability, and Health (ICF) is the methodological process that allows for the definition of categories representing a set of functional outcomes related to a specific health condition. To validate a Core Set for Chagas Disease (CD), a qualitative study was conducted to understand the functional perspectives of this population.

Based on focus groups, this qualitative study represented the second stage in creating the Core Set and aims to list candidate categories that will be analyzed in subsequent phases.

The focus groups were conducted to identify the most relevant categories for adults of both sexes diagnosed with the cardiac form of CD, related to the functional consequences of the disease. Significant concepts were identified from the transcriptions using the condensation method. Subsequently, the concepts that emerged from the participants' statements were linked to ICF categories by two independent researchers.

Sixteen adults (mean age: 67 ± 8 years), including 10 women and 6 men, participated in six focus groups. A total of 180 relevant concepts were identified, which were mapped to 41 of the 125 second-level categories from the ICF checklist. The identified concepts represented all ICF components: Body Functions (43% of concepts), Body Structures (7% of concepts), Activities and Participation (26% of concepts), and Environmental Factors (24% of concepts). The most frequently mentioned categories were: b134 (Sleep functions), b152 (Emotional functions), b280 (Pain), d930 (Religion and spirituality), and e310 (Immediate family). Patients with CD experienced a complex condition where sleep functions, emotional functions, and the presence of pain are interrelated, creating a significant impact on their quality of life.

The use of religious practices and the support of the immediate family appear to be important resources in managing these conditions.

The identified categories will be added to the list of candidate categories for reaching a consensus on a Core Set of the ICF for individuals with CD.